Life According to Sam is a documentary feature about one family’s courageous fight to save their only son from an extremely rare and fatal disease, progeria. The average age of death from progeria is 13, because there is no treatment and no cure. Dr. Leslie Gordon and Dr. Scott Berns are set on changing this. Their son, Sam Berns, is turning 16 this year. When Sam was diagnosed with progeria at age two, doctors told Leslie and Scott to simply enjoy Sam while they could. They refused to believe this was the answer. They spearheaded a campaign to not only save Sam, but the other children in the world who share his disease. In less than a decade, their extraordinary advances have led to identifying the gene at fault, creating the first drug trials in hopes of treatment, and revealing the amazing discovery that progeria is linked to the entire human aging process. Life According to Sam is an inspiring film about the power of family and how we make the most of our lives in the time we are given.
Sundance Film Festival, January 2013
Airing on HBO 2013